The non-profit announced this week the expansion of its online operation including a new state-of-the-art website and community building platform.
May 9th, 2021
Since its inception Scleroderma Warriors sclerodermawarriors.org ( Skleh – ruh – dur – muh ) has sought to support those affected by the rare autoimmune disease Scleroderma. Sclero (hardening) Derma (skin). Tightening of the skin and ligaments are the typical visual indicators of the disease, however, not visible are the internal organs that are being attacked by the patient’s overactive immune system. Scleroderma is a progressive disease and presently there is no cure.
Currently the Scleroderma Warriors Project offers children and grandchildren of those diagnosed with diffuse scleroderma grant opportunities for secondary education. However, the non-profit just announced the expansion of its efforts to include a state-of-the art online communication platform created by Mitch Granholm and Bryan MannEntzel, co-founders of Greater Thought Media and Design.
Those afflicted by Scleroderma often experience feelings of loneliness and isolation, due, in large part, to the rarity of the disease and the sparse information available. The goal of this expansion is to create an online community for people affected by Scleroderma, whether they are themselves diagnosed or are a friend, family member or caregiver of someone afflicted.
“When I was diagnosed in 2019 I had never heard of the disease, in fact, I couldn’t even pronounce the word” stated Melanie Gornick, founder and Chairwoman of Scleroderma Warriors. “As with other rare diseases Scleroderma is a lonely one to live with; this feeling of isolation is what encouraged me to build this online platform. I hope to one day see this site become not only an online community but also an online family.”
It is the mission and purpose of Scleroderma Warriors to educate the public on Scleroderma and promote secondary education through grant offerings to children and grandchildren of those who have been diagnosed with diffuse systemic scleroderma. Scleroderma Warriors is entirely supported by charitable giving.
For more information contact us at: sclerodermawarriors.org/contact-us/