The non-profit is hosting an open event in Bloomington to raise awareness.
Sept 15th, 2021
Following the launch of its new website and online forum, Scleroderma Warriors is hosting its annual fundraiser on Saturday, September 25th at its founders’ residence in SW Bloomington. This is the first time the event has been open to the public. This outdoor, family and dog friendly event will feature Nathan’s Hot Dogs, Ben & Jerry’s ice cream, music, games and prizes, raffles, a silent auction, several activities for the kids as well as an opportunity to mingle with a wide array of people from across the metro and beyond–in support of their mission. This year’s theme is: Scleroderma: Here’s My Story; patients and love ones offer a peek into what it looks like to live and be diagnosed with this debilitating disease.
Scleroderma is a rare autoimmune disease in which one’s overactive immune system attacks the skin and internal organs. Scleroderma is a progressive disease and although great strides have been made in the treatment, currently there is no cure.
Scleroderma Warriors (sclerodermawarriors.org) provides higher education grant opportunities to students affected by Scleroderma. The organization has built and maintains a free online community platform to give/receive support and to access educational resources.
“When I was diagnosed in 2019 I had never heard of the disease, in fact, I couldn’t even pronounce the word” stated Melanie Gornick, founder and Chairwoman of Scleroderma Warriors. “As with other rare diseases Scleroderma is a lonely one to live with; this feeling of isolation is what encouraged me to build this online platform. I hope to one day see this site become not only an online community but also an online family.”
It is the mission and purpose of Scleroderma Warriors to educate the public on scleroderma and promote secondary education through grant offerings to children and grandchildren of those who have been diagnosed with systemic scleroderma. Scleroderma Warriors is entirely supported by charitable giving.
Scleroderma Warriors is a registered 501c3 non-profit. Tickets are tax-deductible.