My wife was diagnosed with scleroderma almost 2 years ago. I felt helpless and confused as she was experiencing a lot of joint pain and swelling, finger discoloration, fatigue, lack of sleep along with a host of other issues that went unexplained, even after almost daily doctor and specialist visits.
It’s been a very emotional journey, especially with all the unknowns and feeling of helplessness for someone I care about so much.
I realized all I could really do is be supportive in her effort to research the disease and show compassion for what she was going through everyday. I’m so proud of her in how she’s attempted to cope with this disease, helped others along the way and given back to the Scleroderma community.