#706
Sue@Youghal
Participant

Hi Lulu
Unfortunately no specialist near me. in Cork. I am going to ask for a referral to a Consultant in Waterford.with really positive reviews on facebook. Still no Care plan or any treatment. Just waiting 8 weeks for an MRI scan as I have unbearable headaches that have affected my hearing. The Rheumatologist in Cork Ireland was horrible and arrogant and told me it was very hard to diagnose Scleroderma as “there are no tests”. I challenged that and he said well I won’t be doing any tests and I won’t be changing my diagnosis of osteoarthritis which I also have,(despite my blood results showing several autoimmune antibodies).

Trying to get a referral but I have not been able to see my GP as he is extra busy with Covid Vaccine jabs. I have found the following Facebook groups all really helpful and supportive .
1.keeping er lit’ IRELAND Scleroderma support group
2. Diffuse/Limited Systemic Sclerosis – Scleroderma
3. Scleroderma & Raynaud’s UK – SRUK Community Group
Good luck xxx Sue@ Youghal

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