[Lizzie]

Hi everyone, so I am new to Scleroderma, I honestly had got to the point where I thought maybe it was just me, maybe it is all in my head. I have been struggling and pushing through for so long. Now I have a diagnosis, I am trying to be kinder to myself. What I am struggling with is do I tell my kids? They are age 11 and almost 7. I know they see my struggles, but then sometimes they don’t, sometimes they are angry I don’t want to jump in a freezing pool, or I am tired, again. Part of me wants them to understand I’m not being a spoil sport, but then an equal part of me thinks they are kids and this is not something they should worry about.

I’m literally torn. What did you do?

[Lizzie]

I dread telling anyone close to me, it’s exhausting, I have a hard time navigating the conversation . I feel like I have to gauge how they feel and make them feel better.

[Author]

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