Been diagnosed with Pyoderma Gangrenosum?
Pillar Patient Advocates is hoping to include 6 patients who have had an ulcer from Pyoderma Gangrenosum within the last 6 months to participate in a 75 minute phone/web interview…
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Welcome Warriors! The Warrior is created by the adversity they’ve faced. Their strength and virtue come from those around them; those who have shown them the way.
Scleroderma News Article – Everolimus in Fat Droplets Eased Scleroderma Symptoms in Aged Mice
The immunosuppressant everolimus, carried aboard droplets of fat (liposomes) to lung cells may ease scarring and inflammation linked to systemic scleroderma (SSc), a study with aged mice found. The findings provide “preclinical…
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Scleroderma News Article – Cell Therapy Results Spur Pivotal Trial in Diffuse SCL Hand Function
Fat-derived cells from adults with diffuse cutaneous scleroderma that are then injected under the skin of the hands led to clinically meaningful improvements in hand function, according to published data from the…
Read More Scleroderma News Article – Ultrasound Plus Manual Therapy Helps in Healing Digital Ulcers
image credit sclerodermanews.com A combination of ultrasound and therapy that includes joint manipulation and massage improved hand function and ulcer wound healing in a small group of systemic sclerosis (SSc) patients with…
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Scleroderma News Article – FAME-iSS Program Lessens Fatigue, Helps Manage ‘Overlooked’ Symptom
image credit sclerodermanews.com The Fatigue and Activity Management Education in Systemic Sclerosis program — known as FAME-iSS — lessened fatigue and increased the use of strategies for managing what researchers…
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Welcome to the team Leah!
We are excited to announce that, effective today, Leah Kleine has joined the Scleroderma Warriors Board of Directors as acting Treasurer. We are confident that Leah’s accounting and budgeting expertise…
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Related Conditions – Article from Scleroderma Foundation
Scleroderma Related Conditions Gastrointestinal Issues Lung Involvement Raynaud Phenomenon Sjögren Syndrome Gastrointestinal Issues People with systemic scleroderma may develop abnormalities of the digestive system and gastrointestinal tract from the mouth…
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2021 Scholarship Awarded!
Our 2021 Scleroderma Warriors Scholarship has been awarded! Join us in congratulating Katie. Upon being awarded the scholarship, Katie requested that we share her essay on our website for others…
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Newly Diagnosed: Taking the First Step on Your Journey – From Scleroderma News
Becoming educated is a good place to start on your journey with scleroderma. Whether you are a patient or a caregiver, knowing as much as possible about the disease will…
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Having Scleroderma Has Helped Me Understand My Father’s Suicide
Image credit SclerodermaNews.com *Editor’s note from Scleroderma News: As the title indicates, this column discusses suicide. Helpful resources can be found at the end of their column if you need…
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