Scleroderma Warriors | melanie gornick | Activity https://sclerodermawarriors.org/members/mgornick/activity/ Activity feed for melanie gornick. Fri, 17 Apr 2026 08:17:21 -0500 https://buddypress.org/?v= en-US 30 hourly 2 adfcae8917affb01dcc1af47ca1fdba7 melanie gornick replied to the topic Scleroderma Warriors General Discussion in the forum Scleroderma Warriors Forum https://sclerodermawarriors.org/topic/scleroderma-warriors-general-discussion/#post-792 Wed, 26 May 2021 17:25:11 -0500 Hey Kari-

I’ll be thinking of you today, I hope your appointment goes well. There is a chart that Scleroderma Education Project released that references blood markers and what they mean…I thought it was very helpful.…Read more

]]> c8375e5d507cddf8cc12bfe7e155d9c7 melanie gornick changed their profile picture https://sclerodermawarriors.org/activity/p/143/ Sat, 22 May 2021 22:22:25 -0500 0 789110f2c6c68c9be893a4d00e4234ba melanie gornick changed their profile picture https://sclerodermawarriors.org/activity/p/142/ Sat, 22 May 2021 22:21:53 -0500 0 c2d8b4968d9173a140fbf01ccf82c697 melanie gornick changed their profile picture https://sclerodermawarriors.org/activity/p/141/ Sat, 22 May 2021 22:21:24 -0500 0 6b8711165c4b9d8d2d4149ff2ab19711 melanie gornick changed their profile picture https://sclerodermawarriors.org/activity/p/140/ Sat, 22 May 2021 22:20:07 -0500 0 ac77f77fdf065188fcc30b6b6c3f5318 melanie gornick changed their profile picture https://sclerodermawarriors.org/activity/p/117/ Wed, 19 May 2021 15:20:42 -0500 0 7f5c5dc3ec950de833b4c99a31051409 melanie gornick replied to the topic How did you explain your diagnosis to friends and family? in the forum Scleroderma Warriors Forum https://sclerodermawarriors.org/topic/how-did-you-explain-your-diagnosis-to-friends-and-family-2/#post-729 Wed, 19 May 2021 15:16:47 -0500 Hi Lizzie-
I waited about 3 months. It was quite apparent that there was something wrong (that I couldn’t hide) but waited to tell them exactly what until I understood it myself. My kids are all older, I have only one left in HS. If I had younger kids I don’t know how I would have handled it.
Anyone reading this post who have younger kids ple…Read more

]]> e8fc2c210e07a170d9ff5048fbc7c304 melanie gornick replied to the topic Scleroderma Warriors General Discussion in the forum Scleroderma Warriors Forum https://sclerodermawarriors.org/topic/scleroderma-warriors-general-forum/#post-727 Wed, 19 May 2021 14:59:05 -0500 Okay, my husband often reminds me to pare back my enthusiasm when I speak to others about life expectancy as to not unintentionally offer false hope. I have a tendency to be uber-optimistic, although diagnosed with diffuse, I am confident I will live to see a cure. Anyhow, that said, I just spoke with someone who has matched my optimism with…Read more

]]> e3e1371acdd20ca68677f0b2a9ad8c98 melanie gornick became a registered member https://sclerodermawarriors.org/activity/p/34/ Mon, 26 Apr 2021 19:09:45 -0500 0